Sep 2026· Behavior Analysis in Practice· 0 citations· 66 references
Abstract
Applied behavior analysis services are expanding rapidly while facing increased scrutiny from autistic people, families, and advocates, underscoring the need for ethical, family-centered, and ecologically valid intervention research in real-world service systems. The PALMS Project is an ongoing federally funded hybrid effectiveness–implementation clinical trial comparing the Early Start Denver Model, a naturalistic developmental behavioral intervention, to applied behavior analysis as usual in community-based agencies across the United States. This paper examines early lessons from the first years of the trial to describe participant characteristics, explore barriers and facilitators to research participation, and highlight potential strategies for strengthening research infrastructure and research–community collaboration in service organizations using an implementation science framework. To date, 18 agencies and 113 providers across 13 states have consented. Recruitment and retention challenges prompted eligibility expansion and targeted outreach, as well as ongoing implementation planning with agencies to reduce burden and support engagement. Organizational context was examined using the Implementation Climate Scale, which assesses the extent to which organizations expect, support, and reward evidence-based practice use. Scores indicated strong perceived focus on evidence-based practice but comparatively low perceived rewards, and agency leadership reported higher overall implementation climate than frontline providers. Overall, findings emphasize that successful community-based autism intervention research depends on building durable, reciprocal partnerships and practical participation supports that align with service realities and community priorities.
Effective implementation of evidence-based practices in community settings requires balancing scientific rigor with community partnership principles. While frameworks exist for documenting modifications to intervention delivery, no comparable approach addresses adaptations to research protocols themselves, particularly...
Catherine Mello, M. Rivard, C. Lefebvre· Evaluation and Program Plann...· 0 citations
This study examines the feasibility of integrating Cultural Consensus Modeling (CCM)—a structured anthropological method for identifying shared cultural beliefs—into community-engaged public health research within the Research Centers in Minority Institutions (RCMI) framework. In collaboration with the RCMI Community E...
Mark Remiker, Caroline Mende, Alexandra Olin et al.· Frontiers in Public Health· 0 citations
There is limited practical guidance for researchers and oversight boards in identifying and addressing group-level risks in the context of repository-enabled research. The Community Health Interests for Researchers & Oversight Networks (CHIRON) Toolkit is a community co-designed, nudge-theory-informed online inte...
Megan Doerr, Shaun Kalweit, Odia Kane et al.· BMC Medical Ethics· 0 citations
Abstract:Background: Involving individuals with lived experience in the evaluation process is essential. Little research or evaluation to date has assessed member perceptions of their participation in this process over time, and how those findings were used to adjust community engagement activities. In July 2020, a phi...
Jennifer L. Holcomb, Anna Forte, Lacourdaire Camargo et al.· Progress in Community Health...· 0 citations