S. Carrasco-Molina

Challenges in the Transition of Patients with Rare Diseases from Pediatric to Adult Care: Toward an Individualized, Person-Centered Model

Rare diseases (RDs) collectively affect millions of people in the European Union, and advances in early diagnosis, neonatal screening, and treatment mean that increasing numbers of patients with childhood-onset RDs now reach adulthood, often with chronic sequelae and complex, long-term care needs. Transition from pedia...