Johannes Porzelle

Genetische Daten in der Transplantationsmedizin

The increasing use of genetic diagnostic methods enables ever more precise, personalized medicine. At the same time, it leads to the collection of genetic data that may also contain information relevant to third parties. Such methods are also now routinely used in transplantation medicine. Nevertheless, it remains unclear whether physicians are permitted or even required to disclose the genetic data of deceased organ or tissue donors to their relatives. This thesis addresses this regulatory gap. Following a discussion of the scientific foundations, it analyzes the current legal framework, identifies the existing need for legislative action and develops a practice-oriented regulatory proposal. This Title is also Available as Open Access.