Data fragmentation, lack of standardization, and incomplete clinical context limit the utility and reuse of datasets in biomedical research. Core facilities (shared resources) generate a large portion of research data and are well positioned to implement FAIR (Findable, Accessible, Interoperable, and Reusable) data pra...
Mousumi Ghosh, Ying Huang, Emily S. Boja et al.· Journal of Biomolecular Tech...· 0 citations
Nine-year-old brain tumor patient Gabriella Miller challenged members of Congress to "stop talking and start doing" when providing federal funding for research into cures for pediatric cancer and congenital anomalies. Though she ultimately lost her life to that cancer, her advocacy efforts resulted in the 2014 Gabriell...
David M Higgins, Christopher Blackden, Miguel A. Brown et al.· American Journal of Human Ge...· 0 citations
The Childhood Cancer Data Initiative (CCDI), a 10-year $50M per year data initiative, brings together doctors, researchers, and families affected by cancer to learn from every child diagnosed with cancer, speeding discovery for new medical advances. In partnership with the Children’s Oncology Group (COG), NCI launche...
Emily S. Boja, Subhashini Jagu, Joseph A. Flores-Toro et al.· Cancer Research· 0 citations
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