Author

Clara L. Gaff

2 papers indexed here

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Open access Aug 2026

Enhancing Parents' Experiences of Paediatric Genomic Testing in Usual Outpatient Care: Insights From a Multi-Perspective Qualitative Study.

AIM The aim of this research was to explore what makes (or would make) for good genomic care delivered wholly or in part by paediatricians. METHODS An interpretive description, qualitative study with parents of children offered genomic testing as an outpatient for a condition other than cancer; general and subspecial...

Erin Crellin, M. Martyn, Selima Ymer et al. · Journal of Paediatrics and C... · 1 citation

Review Open access Oct 2026

Genomic Data Governance Challenges Between Research and Clinical Care: A Scoping Review

ABSTRACT Introduction The translational nature of genomics highlights the importance of developing a robust genomic data governance framework. To inform the development of such a framework for Australia, we conducted a scoping review to identify genomic data governance and management differences between research and cl...

Alice M. Kim, Bronwen Merner, Mark Taylor et al. · Health Expectations · 0 citations