Author

A. Grüters-Kieslich

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Dataset Open access Sep 2026

Strengthening Rare Disease Data Readiness: a semantic approach to cross-registry interoperability

Rare diseases affect an estimated 446 million people worldwide, yet reliable epidemiological data are scarce due to insufficient data sources and lack of standardization. The German National Registry for Rare Diseases (NARSE) aims to establish a comprehensive epidemiological data basis and enable data availability for...

Clemens M. Hentrich, J. Vasseur, Ines Reinecke et al. · Scientific Data · 0 citations

Editorial Open access Jul 2026

The German National Strategy for Gene- and Cell-Based Therapies: Generating Impact by Employing a Novel Multi-Stakeholder Approach

The main goal of the German National Strategy for GCT is to ensure patient access to advanced therapies while strengthening Germany’s position as an international hub for biomedical innovation.

Christian Gallus, F. Ayuk, P. Beckhove et al. · Human Gene Therapy · 0 citations